This was prescribed for very high pressure in my eye after a cornea transplant surgery. The pain was so bad it caused nausea at first and then I started fainting (I was just in and out of it. And when I was in I wasn’t coherent nor do I remember hardly anything at all about that night that’s just how bad the pain was for me). The ophthalmologist in the ER loaded me up on this medication and then sent me a prescription to my pharmacy. The medication did what it needed to do which was reduced the fluid buildup in my eye which, of course, relieved the excruciating pain I was experiencing so yes A+ for the effectiveness of the drug on reducing the fluid buildup in my eye and fairly quickly as well. But man the side effects I have experienced with this medication have been off the wall. I have had shortness of breath. I have been exhaustingly tired 24/7. Like the next day after the ER visit I was so tired feeling I could barely make it to the restroom. I never had it checked but I can almost guarantee you that my oxygen levels were low. I have been dizzy similar to vertigo. If I was standing, I look like one of the bobble dolls just swaying back-and-forth. If I was walking, someone would probably think I was drunk because I was walking all over the place and then before I could even get to where I was going, I would start getting nauseous and dizzy and my head would be spinning. I also started experiencing tingling around my mouth. I also experienced Coca-Cola products to taste horrible. I only wanted water. I had no appetite. so I was on the medication for three full days and today he took me off of it and I’m still feeling the side effects of it and probably will for the next couple of days until I get this out of my system so F- on the side effects for me but A+ on the effectiveness of the medication and in the reduction of fluid on my eye. So yes, I Would go through the side effects again, instead of having to experience the worst pain of my entire life again.
I have been using acetazolamide for nearly 3 weeks, and apart from a general feeling of tiredness and a need to urinate more frequently I don’t seem to have had any side effects. I have been prescribed it as my eye pressures are high, my normal eye drops and SLT have not brought them down. I have a bad reaction with any eye drops that contain dorzolamide. I expect to take acetazolamide for 3 months after which surgery will probably be the only option. If I can I will do a follow up post in a few weeks.
I was on Acetazolamide for over a year to treat Idiopathic Intracranial Hypertension, and it did effectively lower the pressure of my spinal fluid. However, I experienced a lot of terrible side-effects that made taking this drug a nightmare. Horrible joint pain in my knees, pelvis, and wrists, to the point where they diagnosed me with carpal tunnel in both wrists. Blotches and hard lumps under the skin all over my legs which have only faded slightly over time. It also altered my sense of taste, making certain foods and drinks inedible.
i started taking this about 4 days ago.. the dose increases every 3rd day. so far my headaches are worse (like breathe deep or cough and feel like a knife jamming thru my skull), im nauseous, my hands and arms tingle almost like i can feel a heartbeat in each finger, i cant drink anything except water... everything else tastes so gross and im more tired then i was before. i know its only been 4 days but so far its not helping anything in my opinion.. any advise ???
I have been taking this medication for Idiopathic Intracranial Hypertension for about a year and I have seen some great improvements in my vision. I no longer have blackouts and I can see alright. My only problem with it is the fact that I have to take it with a drink (I'm lazy and sometimes don't take my medication because I don't want to get a drink). Other than that, I enjoy this medication. I like not dying!
I am taking this medication for Idiopathic Intercranial Hypertension. I have been taking the medication for about 4 months currently. side effects are tingling or numbing in hands, tense muscles around the lips, and diarrhea. These symptoms do not occur 24/7, just from time to time. So far this medication has helped me feel like a person again. No more migraines, vision is less blurry, no longer feeling confusion or dazed, and less light sensitivity. This has improved my life significantly. Soda tastes extremely weird along with any other carbonated beverages. I take 250 mg twice a day. When first taking this medication I felt very drowsy but not much anymore. I do not drink alcohol on this medication as it is not advised. So far this medication has been helpful although the side effects that occur here and there can be a bit annoying.
I have been taking this medication due having blackouts & ringing noise in the ear. I thought it may be because I have not been for my routine yearly eye checkup. I scheduled an appointment & They noticed paplliedema in both my eyes. They referred me to an ophthalmologist for confirmation. The ophthalmologist then referred me to a neurologist. The neurologist ran many test on me & diagnosed me with PTC. She put me on 250mg & made me come back for a visit and the mg of the medication did not help the swelling go down. I had to get a lumbar puncture done & fluid was high on my spine. It was at 48. They removed fluid to get me down to 22. They then readjusted my medication to 500mg PO BID. The side effects were horrible at first. Tingling in the hands, feet, tiredness, very forgetful, & stayed confused. I even couldn’t walk up stairs without being out of breath. I had diarrhea as well. I am 2 months in taking this medication and side effects are way better. I still am a little forgetful & also feel tingling in hands and feet every now and again. I have to go to doctor once per month for checkups. I am thankful for going to doctor to get treated, because I am an LPN and it affected my job to where I was blacking out and couldn’t drive to work. I am just thankful regardless of the horrible side effects.
Diagnosed with Retinities Pigmentosa over 8 years ago. Cannot tell any effect, have tried various dosages. I also have Mieniere's. -- for this, with no scientific evidence - I am convinced it helps. I take sparingly, as I feel I need. Acts as a diuretic, which some recommend for inner ear problem.Maybe, just maybe another off label use??? Interested on any insight - does this sound sane?
they are giant pills. im on day 6, i am switching from topamax 2 times a day to this, 2 times a day but these are giant capsules. anyway, i have noticed i am extremely tired. i didn't think much of it since i am always tired but i cant even walk around my house or up the stairs without becoming exhausted. i have had diarrhea yesterday and today. so far not any tingling i can notice, but topamax made me tingle A LOT, so i may have some tingles and not realize since it might not be as bad. my eyes hurt, but not the hurt that something is pushing on it, more like when you get a flash of light in your eyes and it stings. i feel a little anxious but that could be because i am stressed about being even more tired than before (lol).
Though there has been some really rough side effects they’re not bad enough that I want to opt for a brain shunt. One question though, has it caused anyone else to lose an excessive amount of hair??
This medication has been a godsend to me. I have altitude sickness when I am as low as 7,000 feet. The first time I took this medication, I had a strange feeling in the base of my brain for the first 6 hours after taking the initial pill, but I never had that or any other side effect since that initial episode. This medication allows me to be comfortable at even 14,000 feet. I am prescribed this anytime I am traveling to a high altitude. I basically live at sea level and could not travel as we do to wonderful parts of the world without this medication. I only use it two or three times per year.hme761
I was taking this medication as a short-term solution for my pseudotumor cerebri until I could have my surgery done. This medication did do what it was supposed to. However, the side effects were horrible. I was always short of breath ( my O2 % was at 92% a majority of the time) and I was always tired.
Used to altitude sickness even on airplanes (cabin air pressure similar to 6-8K feet)and higher mountains. This medicine has been a life saver for me in avoiding that headache pain, and associated nausea. Well worth trying if these symptoms seem like yours.
been taking 2000mg a day for 3 months, had Optic nerve sheath fenestration done 2 months ago, still pressure is to high 45. going in tomorrow to have a brain angiogram done, tons of test and still trying to find a cause so I don't have to do a shunt. For me I am one of the few that the drug didn't help but they don't want to take me off just in case it is working some. Metal taste, fatigue, and the runs are the worse,, so far, on the weekends I sleep 11 hours to catch up on what I loose during the week
Have been taking this since I was diagnosed in 1999. My neurologist told me that I was a textbook case because it worked so well for me. Started out on 250 mg (3) times a day and now only take twice a day. I am going down to 1 a day and hope that the fluid stays at bay. I don't want a spinal tap again.
Pain started in December 2014. This medication has done wonders.I feel like a human again.
Effective to reduce eye pressure and damage to optic nerve. Temporary side effects included significant change in how things tasted and minor nausea. I had permanent worsening of tinnitus, but full effect didn't show up until after I had stopped the med (about 6 months). Still better than a brain shunt which is the only other option.
I have been on this medication for a little over a year. I have super high pressure in my head and was blacking in and out in my right eye. And towards the end started blacking out in my left. I take 250 MLG 4 times a day which is hard to do. Although the crazy headache is gone I constantly still hear the load throbbing in my right ear. The wanted to put a shunt in but that is terrifying. And I don't know if it will fix the problem completely . so I just deal with was problems I have left. Since theybars nothing like they used to be. I can actually function. The only side affect I have noticed is hands going numb. And soda tasted weird the first couple of months.

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Heart Disease: Symptoms, Signs, and Causes See SlideshowI have been taking this medication for over 10 years and the only other option was a shunt in my head. It is an extremely expensive medication, but I have no other choice, but to take it. It is the one thing that I CAN NOT live without. I will gladly deal with the unpleasant side effects and the cost-if it keeps me from needing a hole in my head.
I went for a normal yearly eye exam. The doctor told me I have cataracts. I had surgery to have it removed. The surgery was not a success. A few months later they tried to do another surgery to correct the first. Using four different types of eye drops twice a day I slowly developed high pressure in my eye which led to glaucoma. The doctor put me on this pill acetazolimide. It has been a nightmare. All kinds of side affects. Insomnia, headaches, uncomfortable tingling in feet hands and lips. A feeling of being ‘out of it’. Fatigue foggy brain leg pain. I can’t wait to get off this pill. Only though to have major surgery for glaucoma on that eye. ??