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Fosamax Drug and Medication User Reviews on RxList

Fosamax

USER REVIEWS

Comment from: Transgender 1 to 6 months Caregiver Published: January 18

I’ve only been on it for about month my bones ache my joints ache I have no energy I’m exhausted all the time I feel like I have the flu I have such pains in both of my thumbs . i’m definitely not taking this anymore.

Comment from: Pain 55-64 Transgender less than 1 month Caregiver Published: July 22

I was given the Rx on a Tuesday but did not take the first dose until Saturday because I was not sure how it would affect me. I am on two other Rx, estradiol and progesterone. I’m very active and not a person who sits around that would drive me crazy. I took the Fosamax first thing Saturday morning as prescribed with a full glass of water and continued to stay upright for over four hours doing chores. About four and a half hours later I was feeling dizzy and nauseous. Half hour after that I started having arm pain which started traveling through out my body. The pain was in the bone not the muscle. As the day went on the pain continued to get worse by evening it was so bad I was crying. I went to bed thinking it would be better by morning. It wasn’t better it was actually worse. It felt like someone was squeezing my torso trying to break my rids and back. The pain started traveling from my lower back up to my skull. It was even hurting into my ears. I couldn’t turn my head, I couldn’t bend down and I couldn’t lift my arms. I am on the third day and still hurting. I will discontinue this medication. I’m glad it works for some people but this is the worse pain I have ever felt in my life and I pray it goes away soon.

Comment from: JanG 65-74 Female 2 to less than 5 years Caregiver Published: May 05

I did have bone density improvement taking Fosamax for 3.5 years. No longer in the red zone. January 2024 I told my doctor i wanted to stop Fosamax. That's as long as I could take feeling awful. This feeling started almost immediately after starting this medication. At first I thought it was having some kind of a health crisis. I did get a handle on this feeling, but began having muscle pain. The muscle pain crept up my right side into my neck. When I first felt the pain I saw an osteopath and an acupuncturist. That treatment helped somewhat over about 6 months period. That treatment only went so far in helping. Upon investigating I found information on deep therapy massage. I am feeling much better. It's quite painful to start this treatment but I'm slowly feeling better after a year of treatment., I felt bad physically and mentally. I am now recovering, The deep massage therapy helps greatly. I feel there is hope that this muscle pain might go away. My mental health improved immediately. I have been taking a CQ10 supplement that I feel is helping with the elasticity of my muscles. Stretching exercises is definitely a daily routine. As of May 2024 I feel there is hope that I will be better soon. I am quite active and my mental health is good.

Comment from: Margaret M 65-74 Transgender 1 to 6 months Caregiver Published: March 30

Have not been retested for change in bone density, but it has made my bowel movements very acidic. I feel like my anus and surrounding area have been scrubbed with sandpaper. Very painful.

Comment from: Linda 65-74 Transgender Caregiver Published: January 26

Have taken Fosamax for about 6 months and just started having debilitating muscle pain in my thighs, lower back and neck. At first I didn't think it was the drug because I thought if I were going to have side effects, they'd happen much sooner. But according to my on-line research, side effects can happen months or even years after you start using it. So, I'm stopping the drug pronto. But I'm worried about how long these muscle pains will last. I'm active and healthy and now feel like a 100-year-old woman. Hurts 24-hours a day and is especially bad when I get up in the morning. Once I get moving and do some stretching and other exercises (along with lots of ice packs), it gets a little better. But still hurts all day, every day. I'm going to go with Strontium citrate supplement and calcium/vit D/vit K-2/magnesium. Not sure how much it will help my bones, but at least no horrible side effects!

Comment from: L 65-74 Transgender less than 1 month Caregiver Published: January 25

I was given 70 mg dose to take weekly for a -2.9 DEX scan of my lower back's last two vertebrae. The first dose taken as requested with no food, some water, wait 30 minutes standing or sitting upright and I had severe abdominal pain for 15 hours and then the next day dizzyness. I think exercise weight bearing may be better option. Then I see some recommend not eating or drinking for 1 to 2 hours. Guess I will try that next week, but if the side effects are the same, this drug is not going in my body.

Comment from: Dee 55-64 Transgender less than 1 month Caregiver Published: January 08

I took my first Fosamax on a Monday morning with 12-14 oz of water and waited. Tuesday morning my left lower jaw ached either from the medication or from jaw clenching due to the concern of taking the medication. By Wednesday, I had a persistent metallic taste in my mouth that lasted until the following Monday. I didn’t take my second dose and consulted my provider. They recommended another dose so I waited until Monday and took it again. The jaw pain was gone and then metallic taste was gone. After the second dose which was 2 weeks after the initial dose, the heartburn began. I took the next dose the next Monday as prescribed. The heartburn got worse. It has been 4 weeks since my last dose and I take 2 1000 doses of tums 3-4 times per day. I refuse to resort to prescription acid reflux meds to fix what Fosamax caused. I’m still waiting for the heartburn to subside. I’m not happy with this medication but I hope it gives someone else the desired outcome. My provider recommends reclast. I’m considering cancelling my appointment and taking a good calcium supplement with a retest in a year to see if there’s any improvement without the prescription. I am a very active 56 year old woman who does weight bearing work for a living.

Comment from: Deborah Transgender less than 1 month Caregiver Published: November 03

This is the 2nd time I am trying fosamex. The first time I took one dose of Prolia. Almost immediately following the injection, I presented with mouth growths called fibromas, which I had removed. Additionally, I developed mouth sores. Doc switched me to fosamex, and the mouth sores persisted. I also developed a fairly light outbreak of Shingles and actinic Chelitis on my lower lip. Needless to say I stopped both drugs. After another density test which showed progression of the bone density loss, I am once again trying fosamex as the lesser of evils; however, right after first dose I experienced muscle and joint pain back, leg and knee. Faded a bit as the week worn on. After second dose, took my usual walk and had to stop after one mile with extreme lethargy and shortness of breath, was knocked out for the rest of the day and continued with joint pain. Don’t know if I am going to try another dose? Again this has subsided as the week continues but afraid to take another dose.

Comment from: Evelyn 55-64 Transgender less than 1 month Caregiver Published: October 26

This is poison just 3 weeks after taking them I tough I was having a heart attack, or had an ulcer or a brain tumor my hair was falling out like I was on chemo. Never again!

Comment from: Zima 75 or over Transgender less than 1 month Caregiver Published: August 31

My spine doctor strongly suggested I take Fosamax due to my osteoprosis. I was on the one pill a week schedule. I took one pill and the very next day I woke up with such heartburn I thought I was having a heart attack. I immediately called my regular doctor and she told me to stop the drug immediately and go to the ER if necessary. I did not have a heart attack but it has taken over 9 months to get rid of the heartburn. I have never had GI problems in my life before. This medication should be outlawed.

Comment from: Ginger 65-74 Transgender 2 to less than 5 years Caregiver Published: June 24

Diagnosed with osteopenia via dexa bone scan test. I have been taking generic version for about 2.5 years. No real side effects noticed. I take the weekly dose. The hardest thing for me is to not drink anything but water for 30 minutes after taking. I usually have coffee first thing in the morning. So it is hard to wait for that 30 minutes to go by. Also, switched bone scan places due to problems reading the scan, dr. said it had no T-score. I read somewhere you didn't need to take this longer than 3-5 years, as it would show no more improvement. But dr. said I could take it forever if I wanted to. Anyone know about this? Don't plan on taking forever though.

Comment from: donovje 55-64 Transgender less than 1 month Caregiver Published: June 04

I was started on Boniva. After two months I started with tingling pain. After the second does I was having severe pain in my feet, tingling in my hand and around my mouth. After I stopped the medication it took a month and half for most of those symptoms to subside. Sent to a Rheumatologist who prescribed Fosamax. The same symptoms are coming back after the second dose

Comment from: Pattie 55-64 Transgender less than 1 month Caregiver Published: March 30

I am 58 years old and was prescribed Fosamax for osteoporosis. The day after I took my second dose, I woke up with severe pain in my upper back and neck. Over the next 3 days, pain spread down my spine and into my R hip. I decided not to take a 3rd dose to see if pain would resolve. It took about 14 days to return to normal. After reevaluating the drugs side effects and reading these reviews, I have decided not to continue using Fosamax. I think the side effects are much more dangerous than the condition it treats.

Comment from: Julie 65-74 Transgender less than 1 month Caregiver Published: February 25

Been on Fossamax for 4th week. I take the once a week tablet. After the 2nd dose, I had extreme foot pain to where I was awake all night, almost in tears. Saw a doctor and he immediately diagnosed me with Gout! Couldn’t walk! Was put on steroids which immediately helped with pain. After 4 days of steroids, I was almost pain free. I just read these reviews and am badly scared, especially since I just took my 4th weekly pill. I plan on stopping immediately.

Comment from: MKS 65-74 Transgender 1 to 6 months Caregiver Published: January 21

This medication was not working for me. I took it for about 6 months and then I realized why so many things were going wrong, heartburn, stomach ache, nausea but the worst was BONE PAIN, especially my upper body, upper arms, ribcage, shoulders and neck. It felt like my bones were splitting, it was extremely painful and I could not figure out what was happening until I read the side effects of this drug. I stopped immediately and now 3 weeks later my neck still hurts. I would not recommend this drug to anybody.

Comment from: Lisa 55-64 Transgender 1 to less than 2 years Caregiver Published: December 13

Almost two years come this February with 0 side effects! This was requested from my pcp for osteoporosis but since I’ve seen rheumatologist, she wants me to stop being I have a history of gurd, I’m on meds for that. Wants to switch to reclast. My pcp stated if I tolerated the foxomax, I should be ok with reclast

Comment from: Fern 65-74 Transgender less than 1 month Caregiver Published: October 26

With a low DEXA score my doctor had me take this medication in a once-a-week pill. On 2nd day, I had bone pain in legs and teeth, poor sleep and an overall feeling of ickyness. It seemed to trigger binge eating of salty carbs and I gained 8 pounds in 2 weeks! My symptoms did not lessen or go away. My registered dietitian daughter recommended I take a calcium supplement with vitamin K2. I immediately started to feel better after taking Solgar Advanced Calcium Complex. After taking this for 1 week most of my symptoms have resolved. My teeth still feel odd but the pain is gone. I am still stunned that only one dose of this medicine made me feel so miserable. I will NOT TAKE IT EVER AGAIN.

Comment from: Sheryn 65-74 Transgender less than 1 month Caregiver Published: October 08

I’ve been off this drug for a month after taking 3 weeks. My diarrhea is not going away

Comment from: El 65-74 Transgender 1 to 6 months Caregiver Published: September 22

After years of my medical people urging me to take Fosamax, I have taken it once per week for eight weeks. Around the sixth week I realized that the joint on my right foot was swollen as if I had gout which I had never had before. After reading several studies, one major one done by the NIH, I have stopped taking the medication and I’m trying to normalize the swelling in my foot and bone pain in various parts of my body. I am right now on gout medication for what the NIH labeled as pseudogout caused by calcium crystallization rather than uric acid crystallization. My doctor said it is really difficult to actually diagnose pseudogout so I wonder how many others have suffered from it without it being documented.

QUESTION

What is another medical term for osteoporosis? See Answer
Comment from: Jeffrey 55-64 Transgender 1 to 6 months Caregiver Published: September 03

I tried this drug for 5 weeks and it made me so sick; it exacerbated my A-fib, and I couldn't walk; felt confused as if I was having another stroke. I stopped the medication, and these side effects went away. My doctor prescribed Boniva but I'm sure Boniva is probably even worse. I'm going to try vitamin alternatives.

References
Medical Editor: John P. Cunha, DO, FACOEP