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Avastin Drug and Medication User Reviews on RxList

Avastin

USER REVIEWS

Comment from: 75 or over Transgender 1 to less than 2 years Caregiver Published: July 28

Last in injection I went completely blind for about four hours. I had difficulty opening my eyes for over a day with incredible pain. It is over a week and I still have blurry vision thou my WMD has remained stable.

Comment from: Ooops 75 or over Transgender 10 years or more Caregiver Published: February 14

I think of the remove your tonsils and tubes in kids ears that was a rage when i was small. Now, I go in for a cataract opinion and immediately they demand and promote eye injections in both eyes. Now i'm blind in one eye due to "getting a streptococcus" in my eye with the injection that destroyed my retina. I was under pressure to take these shots and should have known better but trusted my doctor. I had over 100 shots and after being blinded I refused anymore. They still pushed for me to keep doing the one good eye I had left. When they figured out that I would never risk the shot again, they said "well you should that cataract taken care of." I did, now I don't even need glasses for driving and only readers for reading. I was paying $500 for bifocals with all the trimmings. It has been a horrible experience and would never get these shots again. It's like a bunch of cattle going for treatment. Shots are extremely expensive and after all the discounting and other things doctors do with insurance companies they are still expensive. It's a racket in my opinion with my care. I was blinded and could not see by the time I was driven home. Horrible, horrible horrible and life transforming. I had one doctor that didn't do every month in both eyes but the last one wanted them done in both eyes every month. He was very irritated that I wanted to see my scans to check any improvement or worsening of the eye. He was very irritated. He said I needed the shots in both eyes every month. He asked if I wanted to keep my license. This seemed very threatening although he said it very low. I feel after my horrible experience that I live with daily that my treatment was not good for me. They just wanted to do the shots. Period. Changed my whole life with how I handle any medical beliefs I use to have.

Comment from: Forever greatfu 45-54 Transgender 1 to less than 2 years Caregiver Published: November 20

I was legally blind without this. This saved my life. I am forever greatful! I get them in both eyes every 2 months. Not enjoyable but better then being blind. Thank you to whoever made this!

Comment from: Roger 55-64 Transgender less than 1 month Caregiver Published: April 27

I was diagnosed with BRVO + macular edema in left eye. My right eye is fine as of now. Initially it was just the retinal bleed but my edema but within a month I developed macular Edema and started having all the expected symptoms with my Vision quality, soreness etc. I'm taking medications for blood pressure for over 10 years. My Retina specialist doctor strongly advised me to take eye injection and not wait for long. He explained to me the process and potential rare complications. I was panicking and worried but after consultations with my Optometrists, primary doctor and family - I decided to start my eye injection journey. It has been a week since I have taken Avastin eye injection and so far, the improvements have been very good. No major side effects as of now. My BP was a bit elevated for the first 24 hrs and my eye was irritated also but all that settled down withing 2 days. As of now I'm happy with this treatment and will continue as long it is needed to save my eyesight. Also, as a result of this my primary doctor has added an additional medication combo for my blood pressure control. So, hoping for the best. I do not want to give excellent rating at this stage because I just started in this path, but I hope and pray the medication does help me in long term. I have decided to fight till the end even if it matters eye injection for next 25 years. I sincerely thank all the medical professionals, clinical staff, Insurance coverage and scientific research community in bringing such medication options to patients.

Comment from: MaisieM 55-64 Transgender 1 to 6 months Caregiver Published: June 22

Ended up with very high bp in a person with previously low bp. Next, I developed awful migraines for months followed by a Mini- stroke (TIA)- transient ischemic attack). Now I have to carefully monitor my pressure and pray for no strokes in addition to cancer. Also it did not work after using 3 months or so. The TIA happened while 3,5 weeks off the drug

Comment from: mae 75 or over Female 2 to less than 5 years Patient Published: November 15

Over two year period, had injections very 8 weeks, progressed to every 6 weeks. My vision in my left eye did not respond to treatment, but right eye did and I can still read, drive, do the things I wish to do. I feel it has been successful for me.

Comment from: majesticmaven 65-74 Female 2 to less than 5 years Patient Published: February 12

I was so blessed to get introduced to this product from my local Kaiser Permanente Office by Dr. Lee P. Schelonka, MD. I am according to my care team, a perfect example as to how your amazing drug should work. I could not be more happy. In four years, this drug has calmed down a bad situation and actually improved my vision. I do think, however, that it is equally important that the doctor be bot only knowledgeable and competent, but trusting as well. Thank you so much for this drug! It has improved both the quality and the comfort of my life.

Comment from: Mog 55-64 Female less than 1 month Patient Published: September 29

Only one eye injection so far. Already improvement. Wish I'd had this years ago when this started. Not pleasant to have. Two more injections to go. One a month.

Comment from: Angie 25-34 Female 6 months to less than 1 year Patient Published: August 26

I have Idiopathic Chordial Neovasculaization which is non age related wet macular degeneration. I had just turned 33 years old when in one day my vision went from perfect to 140/20. I have now had more than 7+ injections each one worse then the one before. Mine are extremely painful as the doctor susp cts that I may be allergic to the idolize used to clean the eye after. While my vision has improved 80/20 I have other things going on with my body that are just not adding up. Such as: I've been losing a lot of hair, at first I didn't think much about it but now when I shower or brush my hair I have gobs of hair come out. Also I've noticed recently that eating certain foods that swollowing is very difficult and food is getting stuck in my throat. After reading things on here I am going to make an appointment with my primary care doctor and tell her my concerns. It's hard for me to acknowledge that I will be needing these inj crooks for the rest of my life.

Comment from: Trish 65-74 Female 6 months to less than 1 year Patient Published: June 29

Just had my 2nd shot, which was more severe than the first. Maybe dosage was increased? Severe stomach pain, abdomen pain, so painful I finished off the Pepto Bismol at 1 am, and took two Alka-Seltzer at 5 am. The first short just caused fatigue, but the second makes me think about taking any more shots. Side effects are too drastic for me.

Comment from: PatR 45-54 Female 1 to less than 2 years Patient Published: June 29

I have diabetic retinopathy which has caused macular edema. My retina specialist initially used laser treatment to stop the bleeding in the areas not in the field of vision which was highly effective. However, in my right eye, there was bleeding in my field of vision where the laser can do damage. I have had about 10 Avastin injections over the past 20 months. The shot does not hurt as you get numbed up. Eye is sore for 12 to 18 hours after shot, but fine after 24 hours. I've had no side effects. The shots have been successful in managing the edema but it does wear off after 6 to 8 weeks requiring an additional injection on that schedule. The doctor's appointment to get the injection can be long (worst was 2.5 hours) as you need to do the vision check/OLT scan then get prepped for the shot, then get the shot. On a busy day at the Dr's office or if there is an emergency he's dealing with, it can be frustrating. Overall, an effective treatment regimen for me with no side effects.

Comment from: CasyK 65-74 Female less than 1 month Patient Published: May 26

I had my first shot May 25th 2017. It was uncomfortable and had to keep my eye shut for 35 min. I felt sharp pain too 2 midol and it subsided. Had to go back to Doctor was seeing a dark spot to right and bottom of eye. It was an air bubble I was told, from the shot and it finally went away. I can see a little more from my right eye still a bit uncomfortable, using preservative free eye drops OTC and doubtful about continuing shots but still researching alternatives.

Comment from: servn-jc 65-74 Female less than 1 month Patient Published: April 14

After 1 injection into my eye, in less than a week after the injection I suffered from uncontrollable nosebleeds lasting up to 90 minutes of bright red blood pouring from my nose and mouth. I'm a truck driver so I would have to pull over and wait them out. It was very scary. My eye doctor denied that this medication had any side effects let alone nosebleeds. My PCP was baffled and sent me to an allergist. He stated that this medication's major side effect was in fact uncontrolable nose bleeds. I was then sent to an ENT doctor who cauderized my entire nose passages to attempt to stop the issue. It did and I would rather go blind then to be injected with Avastin ever again.

Comment from: janb 55-64 Female 1 to 6 months Patient Published: February 21

I have received 2 shots in my right eye for WMD. Very good response so far. Not too painful, and so far no noticeable side effects.

Comment from: Jayeast 55-64 Female 6 months to less than 1 year Patient Published: December 09

Just had my fifth injection...not only has the drug stopped my macular degeneration symptoms (wavy lines, dim vision, and flashing spots)...problems have reversed and nearly disappeared. I had an aggressive onset of the disease...and could not be more pleased. My injections schedule has moved from monthly to every two months. Although getting injections in the eye is an unpleasant thought...the outcome has been excellent.

Comment from: beautifuloregon 35-44 Female 1 to 6 months Patient Published: September 25

I am very young and was told by my retinologist I have Wet macular degeneration in my right eye. He started me on Lusentus and that was ineffective,then started me on Avastin (CHEMOTHERAPY!), which also proved to be ineffective and in fact, made me very sick! Within 2 weeks of receiving an eye injection, I had my first ever sinus infection and I was miserable. I wondered what was going on? Then, I did some research and discovered Avastin is chemotherapy and used as off label for WMD. It was ineffective and the side effects are horrendous! Never again will I let the doctor inject Avastin in my eye.

Comment from: sandyg 55-64 Female 1 to 6 months Patient Published: August 28

I have had DMD for 5 years, within the past 6 months, both eyes have turned wet. About 4 months ago, had the first shot of avastin was in my left worse vision eye,although painful there was no change, and no problems. My better eye once I had the shot I had problems. Its been a week, my eye was inflamed, bruised, and really raw looking. I also have a small tire shape circle with a yellow middle, I have in my lower vision that is not going away after a week.I was very tired, and just felt sick for a few days after shot. Dependent on if there is any improvement, might just let nature take its course.

Comment from: Dee 55-64 Female 1 to 6 months Patient Published: January 17

I had two injections-within two days of the injections I had sinus issues which lasted two weeks, my throat became tight,difficulty swallowing,horrible joint pain and felt tender spots on throat around thyroid.Right before the next appointment all of these symptoms disappeared. I had the next injection and experienced all of the same except this time the spots on my throat became worse. I made an appointment with my DR and had blood work done-my thyroid was in a hypothyroid state which is not the case months prior. My Dr also said I had nodules on my thyroid and should have further testing. I told him my suspicions and just like the Opthamologist he said those side effects would not be from the Avastin injections in the eye as it's such a small amount. I asked him to wait a month before doing the lab work again to see if my thyroid has improved. All of the symptoms disappeared after 5 weeks of my last injection and the nodules on my thyroid if there are no longer painful. My concern is that the drug would case permanent issues. I won't risk another injection

SLIDESHOW

Digestive Disorders: Common Misconceptions See Slideshow
Comment from: Darlene 35-44 Female 1 to 6 months Patient Published: January 16

At 36 I had a retinal branch vein occlusion in my right eye and my eyesight which started to go blurry and I was losing my eye site which was very upsetting to me as I work on a computer for my job and had 20/15 vision my whole life. I consulted with about 3 Dr.'s for treatment and they all suggested I get an Avastin shot in my eyeball. I was very scared to do this but I took the Dr.'s advice and it was like a miracle. I could immediately see perfectly again. I had to have this shot twice. It was not painful at all as they really numbed my eyeball w a q tip of numbing medication and I just didnt look at the needle. It really worked for me and I do highly recommend it. I can see perfectly again.

Comment from: sistergoldenhair 55-64 Female less than 1 month Patient Published: September 13

I am writing this review on behalf of my sister, now deceased because of Avastin. Less than 2 weeks after her first and only infusion, she was rushed into emergency surgery for a perforated bowel. Because Avastin interferes with healing, the surgeons made us well aware of the risk of surgery. She passed away in the ICU 4 days after surgery.

References
Medical Editor: John P. Cunha, DO, FACOEP