My Daughter has drop seizures and has never been seizure controlled since the age of 7 after having severe encephalitis,epidoylex lessened her seizure severity but brought on a load of side effects aggression tiredness weight gain and stomach pain head aches and constipation I would say this probably might have worked has a treatment if it didn’t have seed oil and sulcrose which is known to be very bad for gut health if anyone who has epilepsy
I take it for epilepsy and it has helped me stay seizure and aura free
The taste must be horrible because she is fighting taking it ?? the biggest issue is that after just 4 months it seems to have lost it's effectiveness.
My daughter is a severe epileptic aka LGS. This medicine did not work at first, but we stuck with it because, well, no other options available. She has had seizures since 2008, but as she gets older the seizures get worse and last longer. Epidiolex has reduced her amount of seizures and the duration. There is one problem , the sweetener And her inability to swallow while in aura, or under duress (which is very very often). So, I often have to dispense this for her in her mouth, and try to massage her throat. This sweetener has caused tooth decay in my child. She is loosing teeth between drop seizures and this medication, and her poor dental hygiene. I have talked to her neurologist about this and it's either one or another: stop taking it and have seizures full swing, or take it and suffer tooth loss. Why does it have to be flavored with sucralose and strawberry syrup? Why? Why? Why?
This medication is sweetened with Sucralose, which is terrible for gut health. There are no other options, it only comes in one form. Even if someone has a feeding tube, and no need of sweetener, there is no other form. It would be a decent medication if it did not have that one ingredient. Gut health is very connected to seizures. This med has seemed to help with startle seizures, but then different small seizures were happening, and the startles are back but not as strong. We have room to increase but I’m very unhappy about the Sucralose.
The Epidiolex has helped significantly with significant decrease in absence seizures and clusters and it also has a calming effect. On the negative side, it has caused acute euphoric and delusional episodes that can become dangerous. It is unknown if this is caused by the medicine or by the Epidiolex interacting with other medications.
I Have been dealing with seizures since March 2020 and had been prescribed many other medications that were not very affective and caused very negative side effects. However since starting Epidiolex along with other medications my seizures are under control for going on a year. To the other reviewer that used the medication "1-6 months" I didn't see full results until well after the 6 month mark. I highly recommend Epidiolex over anything else my doctor tried.
While changing over experienced a severe cluster seizure episode followed by Drug fever that lasted 7 weeks. all other test were negative. Lethargy, loss of appetite, extreme thirst, constipation, night sweats. Off of it now and returned to normal.
This cbd has sulcrose and caused behavioural changes and seed oil it is not natural