PHENYTOIN EXTENDED CAPSULE - ORAL

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

Due to the fluctuation in levels I am on a alternating odd day/even day dosing which at times can be confusing but does help me from having any toxic side effects.

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

Due to the fluctuation in levels I am on a alternating odd day/even day dosing which at times can be confusing but does help me from having any toxic side effects.

I have taken this medication along with phenobarbital for a little over 40 yrs. It is taken for Grand Mal seizures. I have been seizure free for almost 20 yrs now. It works.....with one BIG problem! I have developed nueropathy as a result of that long term use. And that...is something else I will have to live with.

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

Due to the fluctuation in levels I am on a alternating odd day/even day dosing which at times can be confusing but does help me from having any toxic side effects.

I have taken this medication along with phenobarbital for a little over 40 yrs. It is taken for Grand Mal seizures. I have been seizure free for almost 20 yrs now. It works.....with one BIG problem! I have developed nueropathy as a result of that long term use. And that...is something else I will have to live with.

good

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

Due to the fluctuation in levels I am on a alternating odd day/even day dosing which at times can be confusing but does help me from having any toxic side effects.

I have taken this medication along with phenobarbital for a little over 40 yrs. It is taken for Grand Mal seizures. I have been seizure free for almost 20 yrs now. It works.....with one BIG problem! I have developed nueropathy as a result of that long term use. And that...is something else I will have to live with.

good

Dilantin works great for me. But the generic will not. Nobody knows why.

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

Due to the fluctuation in levels I am on a alternating odd day/even day dosing which at times can be confusing but does help me from having any toxic side effects.

I have taken this medication along with phenobarbital for a little over 40 yrs. It is taken for Grand Mal seizures. I have been seizure free for almost 20 yrs now. It works.....with one BIG problem! I have developed nueropathy as a result of that long term use. And that...is something else I will have to live with.

good

Dilantin works great for me. But the generic will not. Nobody knows why.

I have been taking Dilantin for 45 years now and didn't have any problem's. I had two seizures in 2000. The blood test showed that I had no dilantin in my system, but I was taking it faithfully. I was also taking St. Johns Wart vitamin and it cleaned out my system, lol. I quit the vitamin and I have been siezure free since.

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

Due to the fluctuation in levels I am on a alternating odd day/even day dosing which at times can be confusing but does help me from having any toxic side effects.

I have taken this medication along with phenobarbital for a little over 40 yrs. It is taken for Grand Mal seizures. I have been seizure free for almost 20 yrs now. It works.....with one BIG problem! I have developed nueropathy as a result of that long term use. And that...is something else I will have to live with.

good

Dilantin works great for me. But the generic will not. Nobody knows why.

I have been taking Dilantin for 45 years now and didn't have any problem's. I had two seizures in 2000. The blood test showed that I had no dilantin in my system, but I was taking it faithfully. I was also taking St. Johns Wart vitamin and it cleaned out my system, lol. I quit the vitamin and I have been siezure free since.

Have taken it satisfactorily for 20 years. However the generic does not work for me. Only the Dilantin brand does.

I have been on this medication since I was 13 years old as I was diagnosed with epilepsy at 10 and have been on phenobarbital 3 times daily and Dilantin the same and when it came me to drive at 14 my Dr. tried Diamox 250 twice a day and that seemed to keep me seizure free and I have driven since I was 15 and am now 55. I have only had 1 seizure due to missing my Diamox so I very good about taking my meds and seeing my doctor yearly as he is very happy with my status. I wished many of you could be seizure free.

I had vertigo and could not walk.i

Due to the fluctuation in levels I am on a alternating odd day/even day dosing which at times can be confusing but does help me from having any toxic side effects.

I have taken this medication along with phenobarbital for a little over 40 yrs. It is taken for Grand Mal seizures. I have been seizure free for almost 20 yrs now. It works.....with one BIG problem! I have developed nueropathy as a result of that long term use. And that...is something else I will have to live with.

good

Dilantin works great for me. But the generic will not. Nobody knows why.

I have been taking Dilantin for 45 years now and didn't have any problem's. I had two seizures in 2000. The blood test showed that I had no dilantin in my system, but I was taking it faithfully. I was also taking St. Johns Wart vitamin and it cleaned out my system, lol. I quit the vitamin and I have been siezure free since.

Have taken it satisfactorily for 20 years. However the generic does not work for me. Only the Dilantin brand does.

I am hoping to connect with someone who approximates my situation. My dosage is 300mg/day. I weigh 145. Leads to approx .25 serum level. Highly qualified neurologist says,"fine" Equally qualified GP says I should prevent eventual liver damage by maintaining .20 s/l. Without going into all precautionary measures I've taken, I stay at home quietly on the one day a week that I skip dosage. Am not overly concerned because on several occasions(family emergencies) I have accidently missed 2 days! Remained cool and carefully monitored situation, relaxed and watched for "aura". Nothing happened. Am 63 and have had 3 seizures since stroke in 1983. Advice anyone? Due to spasticity, I also take Diazepam. That is all. Occasional alcohol. Excellent diet. Salmon, skim milk, home made bread and yogurt. Distilled H2O,sea salt and excellent vitamin regimen.Beef 1/mo. Chicken/Turkey 3/wk. Ala pasta 4/wk. and rice and veggies/olive oil. No butter, only "Smart Balance". Organic eggs 3/wk. Would appreciate further suggestions!

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

Well as far as me not having a seizure is concerned I dont have any, but this stuff at 6am causes me to wake up have nausea that even satan would hate. Also, vomit anything I ate the night before thats left in my stomache. Its pretty much a double edge sword.

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

Well as far as me not having a seizure is concerned I dont have any, but this stuff at 6am causes me to wake up have nausea that even satan would hate. Also, vomit anything I ate the night before thats left in my stomache. Its pretty much a double edge sword.

25 year user. almost 100% effective.

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

Well as far as me not having a seizure is concerned I dont have any, but this stuff at 6am causes me to wake up have nausea that even satan would hate. Also, vomit anything I ate the night before thats left in my stomache. Its pretty much a double edge sword.

25 year user. almost 100% effective.

seems to do the job but the generic form does not no seizures from the time of change to name brand from generic

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

Well as far as me not having a seizure is concerned I dont have any, but this stuff at 6am causes me to wake up have nausea that even satan would hate. Also, vomit anything I ate the night before thats left in my stomache. Its pretty much a double edge sword.

25 year user. almost 100% effective.

seems to do the job but the generic form does not no seizures from the time of change to name brand from generic

I have been taking Dilantin since I had my first seizure 30 years ago. The generic does not work well for me and my doctor won't prescribe it for any of her patients. Unfortunately, my ins will only pay for the generic. But the 70.00 a month is a small price to pay for no seizures. I have had two healthy children,(now grown)neither with problems. I have taken Dilantin and Phenobarbitol for 30 yrs and added Zonegran for the last 8. When my original neuro retired, I went to a new one that decided that I took "dinosaur meds" and wanted me to get current. Even though I had been seizure free for years. Needless to say, I lost a month of my life having numerous grand mals a day until my husband took me to a new neuro that got me back on the original meds. I have some issues with my gums and my memory lately, but again, it is a small price to pay to be able to live my life and enjoy my family!!!!

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

Well as far as me not having a seizure is concerned I dont have any, but this stuff at 6am causes me to wake up have nausea that even satan would hate. Also, vomit anything I ate the night before thats left in my stomache. Its pretty much a double edge sword.

25 year user. almost 100% effective.

seems to do the job but the generic form does not no seizures from the time of change to name brand from generic

I have been taking Dilantin since I had my first seizure 30 years ago. The generic does not work well for me and my doctor won't prescribe it for any of her patients. Unfortunately, my ins will only pay for the generic. But the 70.00 a month is a small price to pay for no seizures. I have had two healthy children,(now grown)neither with problems. I have taken Dilantin and Phenobarbitol for 30 yrs and added Zonegran for the last 8. When my original neuro retired, I went to a new one that decided that I took "dinosaur meds" and wanted me to get current. Even though I had been seizure free for years. Needless to say, I lost a month of my life having numerous grand mals a day until my husband took me to a new neuro that got me back on the original meds. I have some issues with my gums and my memory lately, but again, it is a small price to pay to be able to live my life and enjoy my family!!!!

I have taken Dilantin since about 12 years old now 45 for Petit Mal. When I was first put on meds I had 2 others meds with this one that my first Nuerologist prescribed Phenibaritol and Zarontin. This mix did not totally help and at age 17 the doctor said this is the best thing for you as others in your family it has worked for and can you live with out driving (As I was not totally controlled). When he said this that was the last time I saw him as I could not live where I could not drive. I went to my current Nuerologist he took me off both Zarontin and Phenobaritol nd place me on Depakote with Dilantin. Since then I have been successful on occassion blood levels have changed and I had side effects but I've been seizure free for several years.

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

Well as far as me not having a seizure is concerned I dont have any, but this stuff at 6am causes me to wake up have nausea that even satan would hate. Also, vomit anything I ate the night before thats left in my stomache. Its pretty much a double edge sword.

25 year user. almost 100% effective.

seems to do the job but the generic form does not no seizures from the time of change to name brand from generic

I have been taking Dilantin since I had my first seizure 30 years ago. The generic does not work well for me and my doctor won't prescribe it for any of her patients. Unfortunately, my ins will only pay for the generic. But the 70.00 a month is a small price to pay for no seizures. I have had two healthy children,(now grown)neither with problems. I have taken Dilantin and Phenobarbitol for 30 yrs and added Zonegran for the last 8. When my original neuro retired, I went to a new one that decided that I took "dinosaur meds" and wanted me to get current. Even though I had been seizure free for years. Needless to say, I lost a month of my life having numerous grand mals a day until my husband took me to a new neuro that got me back on the original meds. I have some issues with my gums and my memory lately, but again, it is a small price to pay to be able to live my life and enjoy my family!!!!

I have taken Dilantin since about 12 years old now 45 for Petit Mal. When I was first put on meds I had 2 others meds with this one that my first Nuerologist prescribed Phenibaritol and Zarontin. This mix did not totally help and at age 17 the doctor said this is the best thing for you as others in your family it has worked for and can you live with out driving (As I was not totally controlled). When he said this that was the last time I saw him as I could not live where I could not drive. I went to my current Nuerologist he took me off both Zarontin and Phenobaritol nd place me on Depakote with Dilantin. Since then I have been successful on occassion blood levels have changed and I had side effects but I've been seizure free for several years.

overall this medication has worked well for me. I have taken it for 3 yrs now the only problem I have is some of the side affects are begining to have an impact on me. All in all the medication outweighs the side affects.

I have been taking Dilantin or a combination of Dilantin and Phenobarbitol for about 55 years. My seizures have been gran mal followed by a sleep period of several hours. I am fortuante that the seizures came about one every 3 years. The last one over 35 years ago. The last seizure that I had followed a neurologist's attempt to reduce my dosage. My family doctor noted that my dosage had fallen out of the the therapuetic zone. I have not had a seizure in 25 years now that the medicine is in the therapuetic zone. I have been asked again if I would like to reduce the dosage. I grew up with this medicine in my system and am comfortable with it; I would rather continue taking it the rest of my life than risk any more gran mal seizures. The main thing for me are regular blood tests to make sure the medication remains at the correct levels.

This is the only anti-convulsant that I have been on that has limited the number of epileptic episodes along with the Vagal Nerve Stimulator that was placed one and a half years ago.

Well as far as me not having a seizure is concerned I dont have any, but this stuff at 6am causes me to wake up have nausea that even satan would hate. Also, vomit anything I ate the night before thats left in my stomache. Its pretty much a double edge sword.

25 year user. almost 100% effective.

seems to do the job but the generic form does not no seizures from the time of change to name brand from generic

I have been taking Dilantin since I had my first seizure 30 years ago. The generic does not work well for me and my doctor won't prescribe it for any of her patients. Unfortunately, my ins will only pay for the generic. But the 70.00 a month is a small price to pay for no seizures. I have had two healthy children,(now grown)neither with problems. I have taken Dilantin and Phenobarbitol for 30 yrs and added Zonegran for the last 8. When my original neuro retired, I went to a new one that decided that I took "dinosaur meds" and wanted me to get current. Even though I had been seizure free for years. Needless to say, I lost a month of my life having numerous grand mals a day until my husband took me to a new neuro that got me back on the original meds. I have some issues with my gums and my memory lately, but again, it is a small price to pay to be able to live my life and enjoy my family!!!!

I have taken Dilantin since about 12 years old now 45 for Petit Mal. When I was first put on meds I had 2 others meds with this one that my first Nuerologist prescribed Phenibaritol and Zarontin. This mix did not totally help and at age 17 the doctor said this is the best thing for you as others in your family it has worked for and can you live with out driving (As I was not totally controlled). When he said this that was the last time I saw him as I could not live where I could not drive. I went to my current Nuerologist he took me off both Zarontin and Phenobaritol nd place me on Depakote with Dilantin. Since then I have been successful on occassion blood levels have changed and I had side effects but I've been seizure free for several years.

overall this medication has worked well for me. I have taken it for 3 yrs now the only problem I have is some of the side affects are begining to have an impact on me. All in all the medication outweighs the side affects.

my husband has been on this medicine almost four years,he still continues to have grand-mal seizures,more often and longer.His museles and bones ache and his gums and teeth alway's hurt.

my arms easily bruise on the surface

my arms easily bruise on the surface

I have been on this drug since the onset of my seizure disorder 30 years ago. For the most part, I have found it to be an effect medication, although I started having break though seizures about 10 years ago, resulting in my having to take Lamictal as a supplement. Fortunately, bleeding of the gums has been very minimumal at best, but I have noticed an increase of being tired and/or sluggish. (This could very well be the result of taking both medications, however.)