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Epidiolex Drug and Medication User Reviews on RxList

USER REVIEWS

Comment from: Karen Ingersoll 13-18 Transgender 1 to 6 months Caregiver Published: May 01

This medication is sweetened with Sucralose, which is terrible for gut health. There are no other options, it only comes in one form. Even if someone has a feeding tube, and no need of sweetener, there is no other form. It would be a decent medication if it did not have that one ingredient. Gut health is very connected to seizures. This med has seemed to help with startle seizures, but then different small seizures were happening, and the startles are back but not as strong. We have room to increase but I’m very unhappy about the Sucralose.

Comment from: Karen Ingersoll 13-18 Transgender 1 to 6 months Caregiver Published: May 01

This medication is sweetened with Sucralose, which is terrible for gut health. There are no other options, it only comes in one form. Even if someone has a feeding tube, and no need of sweetener, there is no other form. It would be a decent medication if it did not have that one ingredient. Gut health is very connected to seizures. This med has seemed to help with startle seizures, but then different small seizures were happening, and the startles are back but not as strong. We have room to increase but I’m very unhappy about the Sucralose.

Comment from: Momacita 19-24 Transgender 6 months to less than 1 year Caregiver Published: March 06

The Epidiolex has helped significantly with significant decrease in absence seizures and clusters and it also has a calming effect. On the negative side, it has caused acute euphoric and delusional episodes that can become dangerous. It is unknown if this is caused by the medicine or by the Epidiolex interacting with other medications.

Related Reading: epidiolex

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Comment from: Karen Ingersoll 13-18 Transgender 1 to 6 months Caregiver Published: May 01

This medication is sweetened with Sucralose, which is terrible for gut health. There are no other options, it only comes in one form. Even if someone has a feeding tube, and no need of sweetener, there is no other form. It would be a decent medication if it did not have that one ingredient. Gut health is very connected to seizures. This med has seemed to help with startle seizures, but then different small seizures were happening, and the startles are back but not as strong. We have room to increase but I’m very unhappy about the Sucralose.

Comment from: Momacita 19-24 Transgender 6 months to less than 1 year Caregiver Published: March 06

The Epidiolex has helped significantly with significant decrease in absence seizures and clusters and it also has a calming effect. On the negative side, it has caused acute euphoric and delusional episodes that can become dangerous. It is unknown if this is caused by the medicine or by the Epidiolex interacting with other medications.

Related Reading: epidiolex

Comment from: Justin E. 25-34 Transgender 1 to less than 2 years Caregiver Published: January 18

I Have been dealing with seizures since March 2020 and had been prescribed many other medications that were not very affective and caused very negative side effects. However since starting Epidiolex along with other medications my seizures are under control for going on a year. To the other reviewer that used the medication "1-6 months" I didn't see full results until well after the 6 month mark. I highly recommend Epidiolex over anything else my doctor tried.

Related Reading: epidiolex

Comment from: Karen Ingersoll 13-18 Transgender 1 to 6 months Caregiver Published: May 01

This medication is sweetened with Sucralose, which is terrible for gut health. There are no other options, it only comes in one form. Even if someone has a feeding tube, and no need of sweetener, there is no other form. It would be a decent medication if it did not have that one ingredient. Gut health is very connected to seizures. This med has seemed to help with startle seizures, but then different small seizures were happening, and the startles are back but not as strong. We have room to increase but I’m very unhappy about the Sucralose.

Comment from: Momacita 19-24 Transgender 6 months to less than 1 year Caregiver Published: March 06

The Epidiolex has helped significantly with significant decrease in absence seizures and clusters and it also has a calming effect. On the negative side, it has caused acute euphoric and delusional episodes that can become dangerous. It is unknown if this is caused by the medicine or by the Epidiolex interacting with other medications.

Related Reading: epidiolex

Comment from: Justin E. 25-34 Transgender 1 to less than 2 years Caregiver Published: January 18

I Have been dealing with seizures since March 2020 and had been prescribed many other medications that were not very affective and caused very negative side effects. However since starting Epidiolex along with other medications my seizures are under control for going on a year. To the other reviewer that used the medication "1-6 months" I didn't see full results until well after the 6 month mark. I highly recommend Epidiolex over anything else my doctor tried.

Related Reading: epidiolex

Comment from: msow 25-34 Female 1 to 6 months Caregiver Published: February 18

While changing over experienced a severe cluster seizure episode followed by Drug fever that lasted 7 weeks. all other test were negative. Lethargy, loss of appetite, extreme thirst, constipation, night sweats. Off of it now and returned to normal.

Related Reading: seizure | fever | constipation

SLIDESHOW

What Is Epilepsy? Symptoms, Causes, and Treatments See Slideshow
References
Medical Editor: John P. Cunha, DO, FACOEP