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Accutane Drug and Medication User Reviews on RxList

Accutane

USER REVIEWS

Comment from: notsoeasy 25-34 Transgender 2 to less than 5 years Caregiver Published: June 04

PLEASE UNDERSTAND THE MEDICATION WILL ONLY HELP YOU DURING THE PROCESS OF TAKING THE PILLS. I've done 3 rounds of Clarus/Accutane (isotret) and did not expect major side effects each time that were never lsited on any reviews. First round, was great i experienced some redness, peeling, the normal. Stopped and about 6 months later broke out even more than what was normal. 2nd time, my hair starting falling out and stopped growing, my lips were extremely dry ALL the time. I seriously carried lip balm on me at all times. My skin was soooo thin, even i slitght scratch to the skin, scarred forever. I think i am only now seeing the scares fade. My third time was probably the worst. I experienced an over excess amout of oil production seeping from my face every two hours. my hormones were totally out of whack. my skin got even worse afterwards, oi ont even wear make up. but all of a sudden 6 months later, my skin cannot keep up. no matter what i do. I tried Arazalo. Stevia-A, Birth control. Nothing. I am not stuck with just fluctuting skin. Be cautious of all your side effects and make sure you are choosing a doctor that actually CARES.

Comment from: Anonymous 13-18 Transgender Caregiver Published: January 27

Growing up, my mom had moderate to severe acne, and I started experiencing it when I was just in grade 4. At first, it was just one or two small pimples on my forehead. By grade 7, those few pimples had turned into clusters that spread across my cheeks and nose. I felt so alone—no one else my age seemed to have acne. When I went to my doctor, she prescribed a cream that worked wonders. Within two weeks, my skin was clear. For a while, I thought my struggle with acne was over. But then, in grade 8, I got my first period, and everything changed. My acne came back worse than ever, and the cream that had once been my miracle no longer worked. I spent months trying new creams my doctor prescribed. One after another, they dried out my skin, leaving it peeling and painful, but the acne stayed. My face was constantly raw and stinging, and the pimples just kept coming. At one point, I gave up on prescriptions and tried everything else I could think of—icing my face, expensive skincare brands, drying lotions, serums, acne washes. I spent hours researching and testing products that promised to work, but none of them helped. By grade 9, I had more acne than I’d ever had in my life, and my skin was covered in red marks and scars. It felt like my acne was taking over my life. Every morning, I’d wake up and see dozens of new pimples. No matter how much makeup I tried to use, it couldn’t hide the redness or texture—it just made me feel worse. I avoided mirrors, photos, and even going out in public sometimes because I hated how I looked. I felt disgusting and ashamed, like my skin was ruining everything for me. Eventually, I saw a dermatologist. He gave me a few options: expensive laser treatments, a small pill, or Accutane. Because Accutane had so many risks, he suggested starting with doxycycline, an antibiotic. I was hopeful again, but within weeks, I had severe side effects. Swallowing became so painful that I couldn’t eat for days. I had to stop the pill and then restart with another medication to prevent further damage. While the pill reduced my acne a little, it was nowhere near enough. My skin was still oily, my acne spread to my chest, and my confidence continued to plummet. After three months of limited results, I decided to take Accutane, despite all the horror stories I’d read online. I was scared, but I couldn’t live like that anymore. Looking back, I wish I hadn’t waited so long. Accutane was life-changing. For the first time in years, my skin became completely clear. I still have scars, but they’re fading, and more importantly, I feel confident in my skin again. The only side effect I experienced was dryness, which was manageable and honestly a relief after having such oily skin for so long. To anyone struggling with acne, I want you to know that I understand. I know how hard it is to wake up every day and see your reflection, to feel like no matter what you try, it’s never enough. I know the pain of avoiding photos, wishing for filters to be real, and praying for your skin to heal. Acne can make you feel like a prisoner in your own body. If you’ve tried everything and nothing works, don’t be afraid to consider Accutane. It’s not just about clear skin—it’s about feeling like yourself again. It’s about walking out the door without fear or shame. Accutane gave me back my confidence, and it can do the same for you. You are not alone, and your journey to healing is worth it. Keep fighting—you deserve to feel beautiful and whole.

Comment from: wiiiii 35-44 Transgender 1 to 6 months Caregiver Published: October 28

I am in my late 30s now, used accutane in my early 20s. I didn’t have nodular acne, but I did have terrible and painful acne all over my body (face, back, chest) that resisted every cure I tried. So I used accutane. Had to stop the cure prematurely after 4 months. No hair thinning (my hair is already thin) and I could deal with the dry eyes and lips (to the point that the corner of my mouth would be constantly bleeding), but blood tests showed that it was starting to damage my liver. I had no big symptoms yet aside from occasional pain, but we caught it early cos I was aware of the risks. However, accutane still did help tremendously. Acne didn’t go away completely , but became manageable with birth control. Now (partially also thanks to age and skin care) I have decent skin with only occasional break outs. Would repeat, but make sure you know about the side effects.

Comment from: 13-18 Transgender 2 to less than 5 years Caregiver Published: August 28

side effect of this is very high

Comment from: Ronnie 35-44 Transgender 1 to 6 months Caregiver Published: February 19

The positive reviews are lies. The medicine was taken off of the market because if all the pain and suffering it causes and now I suffer from chronic brain inflammation had two disc's replaced and can barely walk so tell me how this drug can have so many good reviews?

Comment from: Ronnie 35-44 Transgender 1 to 6 months Caregiver Published: February 19

The medicine made my life a living hell I have severe pain now probably for the rest of my life also I had to have two disc's replaced after treatment the positive reviews are lies the drug was taken off the market because it has killed and deformed so many babies and more stop believing in the medical system it is a money gimmick

Comment from: Braden 13-18 Transgender 1 to 6 months Caregiver Published: December 12

This medicine has changed my life, I had severe cystic acne from late Elementary school until I started taking it late middle school and suffered through the brutal side effects like dry skin, nose bleeds, and chapped lips. Now when it is all said and done, I constantly have no acne. I am now getting towards finishing college and still consistently have no acne. The rare occasions when going days without properly washing my face or having sever anxiety and stress I will get a few pimples, no more than 3. This medicine works wonders and saved my self confidence and social life. I am forever grateful.

Comment from: Severe Pain Transgender 6 months to less than 1 year Caregiver Published: October 27

Destroyed my spine and now I suffer from severe pain that can't be helped also had to have cervical surgery after and yes I have had x-rays before and my spine was fine before and to me this is a risk that is not worth it however, it did help clear the acne while I was on it but it did come back after a few months so it is a no from me and if you don't want the possible side effects don't do it

Comment from: 55-64 Transgender 1 to less than 2 years Caregiver Published: September 22

My son had nodular acne on his chest and back was very self-conscious over this. He did Accutane. I brought him monthly for a blood test and he now has beautiful tan gorgeous skin and has no problem with acne. I definitely would do it again , I have a yes, he had dry lips went through a bout of not looking good. We dealt with it and wouldn’t go back. He almost 40 are.years old and looks great!!!

Comment from: Abcde12345fgh 19-24 Transgender 6 months to less than 1 year Caregiver Published: September 11

If I could go back in time to high school me and tell myself to never take this medication, I absolutely would. You have to get blood drawn every month, constant visits back to your doctor every month, and it’s not a 100% guarantee your acne permanently goes away. I did not have absolutely severe cystic acne (if you do I’d say it’s worth it), but I had a lot of back acne and facial acne. It made my life miserable for a good 7 months. By far the worst acne I’ve ever had in my life to the point your face would be bright red and bleeding. Your skin and lips are always severely dry. If I forgot my face moisturizer or chap stick I’d have a mini panic attack because if you don’t have it, your face goes back to bright red and inflamed in a few hours. On the last month (month 8) my acne basically went away completely for 2 years or so. But was it worth it? I don’t think so. For moderate acne and kids that are self conscious about moderate acne, this just isn’t the way. Those 7 months were absolutely terrible and I’d do anything to take it back.

Comment from: Prashant 25-34 Transgender less than 1 month Caregiver Published: July 29

I am male from India , I took this medicine when I was in college . I am having problem of psoriasis on scalp and face near to nose. Doctor advised me to take isotretinoin as it slow down the production of sebum . Before taking this medicine I had very thick hair my classmates said to me how come your hair is so thick like cactus plant. When I took this medicine for 20 days my scalp become more oily hair thin out like completely gone my all known people.including me were in shock. My advice that don't take this medicine as it could ruin your life specially male patients. For acne and skin diseases go for homeopathy or natural herbs it can save your precious human body and life.

Comment from: Journey 13-18 Transgender 6 months to less than 1 year Caregiver Published: June 27

Hi i’m journey my accutane experience has been great!! I am currently on my 4th month!! I am 15 and i have been struggling with acne since the 5th grade, i’ve been looking for all kind of treatments or face wash’s and none of them work until i found accutane. While on accutane Ive had dry lips and dry skin! It was annoying but it’s worth the results! I had acne on my back, arms, chest and face! All of that is gone but i’m still working through some inflammatory on my face! I had pimples all over my face and now i don’t have any pimples just a little bit of scarring. You have to stay really hydrated on accutane so like water, body armour or really just anything, hydration is a big part of accutane. I can’t wait to see my end result!!! Hope I helped!!! Totally recommend accutane!!!

Comment from: HH 13-18 Transgender 6 months to less than 1 year Caregiver Published: February 20

I went on Accutane from January to August (one month I had to take off because of vacation). I weigh 130 lbs and was given 30mg to take day and night. After getting off of it, my skin was the clearest it had ever been but it later came back two months after :( I was incredibly disappointed. Now, my dermatologist and I are discussing potentially going on round two. The worst side effect I experienced was INSANELY dry lips!! I always had to keep applying my medicated lip balm every hour of the day or else my lips would flake and dry out. My face and my scalp was also crazy dry but I actually appreciated it because they were incredibly oily prior to taking accutane (Because it took out the oiliness from my nose, it gave my face the illusion of a smaller nose which I liked haha). As for my mental and physical health, nothing really changed! Even if it did, I barely noticed anything.

Comment from: Jay 25-34 Transgender 6 months to less than 1 year Caregiver Published: January 09

This drug changed my life. At first, I thought it was for the better. As time goes on I am wishing more and more that I could go back and never take this medication. I haven't been the same since. My dermatologist liked to repeat how the "acne curing effects of this medication are permanent"! But, somehow, none of the side effects are permanent? Soon after my course I started feeling just slightly off. I would start to feel more and more off until I'd begin to have panic attacks. I have never been anxious in my life but now I'm having panic attacks while sitting at home? I initially don't make the link between my symptoms and Accutane, until a friend of mine mentioned she was going through something strikingly similar (also took 'tane). I then made the connection and went down a rabbit hole of delving into the medical literature and investigating online communities where people claim to have been damaged by this drug. I can save you the countless hours of researching it yourself: this drug is slow-acting poison. It kills the cells in your body. This drug kills your sebaceous glands, and it doesn't just stop there. It kills cells in glands of the brain and cells in your gut. Dermatologists prefer to use the term "shrink" to make it seem somehow less damaging. If I can stop one person, or even convince someone reading this to reconsider taking this, then this review will be worth it.

SLIDESHOW

Skin Health: 15 Tips for Clear Skin See Slideshow
Comment from: Concerned mom 13-18 Transgender 6 months to less than 1 year Caregiver Published: January 01

My son was on accutane for 6 months. Dr insisted on 80 mg. I said I wanted only 20 mg. I knew this medication had many side effects. Dr was angry with my suggestions. I agreed upon 40 mg . A few months later I noticed white patches around his lip. I called the Dr and told him my concerns. I thought it was vitiligo. Took my son to see him. He said I was right he has vitiligo. I do not recommend this medication to anyone. The vitiligo spread to his eye and his wrist area. Find a holistic way to get rid of acne. I wish I would have said NO to accutane. Please listen. My son is very self conscious about the white patches on his skin. He lost color to half his lip area. It’s not worth it.

Comment from: Mom 13-18 Transgender 1 to 6 months Caregiver Published: November 29

This medicine, Accutane was a game changer for my 14 year old son. He had extreme cystic, acne all over his entire face, and after six months on Accutane, his skin is as clear as it was when he was a baby. Nothing else worked, but this..

Comment from: Jade 25-34 Transgender 1 to 6 months Caregiver Published: October 30

It is such a shame that my body didn't react well to this medication as it has treated my acne incredibly well over the past two months, but I have decided along with my dermatologist that I should no longer take Accutane. Symptoms including dryness of lips and hair are manageable for the outcomes but since I started the medication in August, since then I have been having random spurs of panic attacks and severe chest pain which spreads into my neck, ribs and arms. I have no history of mental health and have never experienced anything like this before, to the point were I was rushed to A and E for an ECG and blood test because I was convinced it was my heart. I have trialed coming off the tablets which has worked, but after re-taking them it started again. I had to pull over my car recently because it was that bad. I'm really devastated that this tablet hasn't worked for me, as my friends have had no problems with it, but for what it's worth I'd rather have bad skin that experience these symptoms again. For anyone feeling the same, please consider stopping for a couple of weeks, as previously mentioned I've no history of mental health.

Comment from: Jenai 13-18 Transgender 1 to 6 months Caregiver Published: October 17

I used oratane when I was 16 to treat my severe acne. However it turned out to be the worst decision of my life. The acne kept getting worse and worse and did not get better at all, it formed septic..my whole face was a gigantic big sore.. I had cracked lips and depression. Then I developed an illness called sacroiliitis where I had extreme pain and was bound to a wheelchair for a month.. please be careful when using this medication!!!! The time I took it, it said it works for 1 out of 7 people but it's a great risk to take.

Comment from: SLY 19-24 Transgender 1 to 6 months Caregiver Published: September 19

took for 3 months, no side effects and cured my really bad acne that i had for 4 years 19 yo i do bodybuilding and hae a strict healthy diet 70% carnivore GOOD LUCK and trust yourself!

Comment from: Rubz 19-24 Transgender 1 to 6 months Caregiver Published: September 01

One of the best decisions of my life. I was loosing my self confidence with severe acne and that’s when I started accutane. Face was clear in 6 months!!! It’s been 7 years and my acne never came back!

References
Pharmacy Editor: Omudhome Ogbru, PharmD