Side effects from diarrhea and nausea and fatigue as well as headaches
I take the Ofev (1 pill 150mg) when I wake in the AM and try hard to take the 2nd 11-12 hours later. Been on it for 5 months now and my stomach issues (bloating, gas, and horrible diarrhea) have not improved. Fortunately I'm retired and can sit in my office waiting for the next rush to the bathroom. It has affected my life as I'm concerned whenever I have to drive more than 1/2 hour. I've been told to take Imodium or similar to reduce my symptoms. Unfortunately after a few days straight of taking Imodium (per label) I experienced constipation. Then I have to go in the other direction to loosen the stools again. I'm still waiting for the sweet spot to regain my stable life again.
71-year-old woman with IPS and celiac got to take the medication over two and a half years ago at 150 mg always not feeling well throwing up and diarrhea switched me over to 100 mg still having vomiting and diarrhea also have has anybody had these side effects should I take an anti-nausea's medication for this
Been taking OFEV for 2 years! I am 85 ..Was on intolerable 150 mg so went to 100 mg. Feeling great. Eat healthy.Take every 12 hours on a full stomach. Had a minor stroke in 1998 .Just found out my carotid artery has some blockage so will talk to my pulmonologist re if I should stay on OFEV. Die of PF or a stroke. I guess one will get me. Long life..no regrets! Right now I feel great! Walk every day! Able to do most everything.
Only been on the drug for three weeks but I have a lot of energy and my cough is almost gone. I have a bit of diarrhoea but that’s easy to control so far. I have a nap in the afternoon most days, I know its early days yet.
Never had heart problems.After 3 months of taking ofev I got congestive heart failure. I was taken off ofev. Also had loss of taste.
Three weeks after starting I began seeing my overall fatigue level increase and I saw my shortness of breath increase. So much to the point that after 3 months I would be out of breath just getting up for work and getting dressed. Have stopped it now hoping to get back to where I was. I was working out regular and walking 2 miles about 3 days a week before. Now i'm lucky to get 1 mile without taking a break half way
I have been taking this medication for 5 months after a while it caused severe diarrhoea I was nearly ready to quit however I have found taking one Imodium each morning and eating a banana with both doses as well as taking a broad spectrum Probiotic daily has really helped and the diarrhoea has stopped completely I’m very happy now I would recommend anyone with diarrhoea to try this
today is 9-6-2021, still having diahrea after stopping use. used from 4-18-2021 to 5-20-2021. not a happy camper
Been on for 8 mos. Was very slow progression until started Ofev. All symptoms are much worse, cough breathlessness, etc. Not slowing it down. Nauseated all the time. I question this drug & am stopping taking it.
My PF had been progressing very slowly over years. Was put on Ofev & all symptoms got worse, cough, breathlessness, etc. Feel nauseated most of time. Has not slowed it down. I Question this drug & will stop taking.
PF for many years. On OFEV for two months. All of the side effects, no discernable benefit. Made me feel horrible, gave me bad diarreah, nausea, side pain. Discontinued use. Spoke to OFEV directly, they agree it does not help breathing at all, it only slows down the progression of the disease. Useless when my breathing is so bad. Who wants tolive longer like this.
Seven weeks on Ofev for Pulmonary Fibrosis. All of the side effects (feel generally horrible; back and abdominal pains, dirreah), no benefit so far. I may be too far gone for help. Have had PF for years.
I was diagnosed with IPF in August of 2018 and after taking prednisone for a bit my Dr switched me Ofev. I've been on this therapy for a while now and according to my pulmonary Dr my lungs have not worsened although they are stable for now.
I am a 65 year old male diagnosed with LUPUS and IPF.I have been on all the other drugs used to teat both and OFEV is my last option.I have been taking it about 6 months now and have gotten worst but not sure if progression has slowed or accelerated.I have been loosing muscle mass but not sure if it is from OFEV.I am suppose to use supplemental O2 but still working and push myself beyond limits maybe I shouldn't.Not a sitter and OFEV does cause me extra fatigue,some diarrhea,raised my blood pressure and causes me to have loss of appetite and periods of headaches.Having LUPUS flareups and IPF it is hard to tell if medication or disease are the cause.Only option left for me is lung transplant which I have already told my DR's is not an option I would do.God bless to all and hope this helps others.
I have Lung Fibrosis caused by a prescription medication. So not exactly IPF. Age:63. Previous health: Excellent . I started on Pirfenidone (Esbriet) and a 2 month trial of high-dose steroids. They were tolerable, but did nothing objectively, according to the PFT tests, so I was switched to OFEV about a month ago. It was OK for the first two weeks, but now I have no appetite, a bit of weight loss, loss of energy, fleeting nausea, loose stools, bloating, general malaise and occasional right sided headache. That is hard to chalk up to pure chance. And my cough is worse then last month (on Pirfenidone), so I may have to go back to Pirfenidone.I have to rate this drug (OFEV) as barely tolerable and of unknown effect on my lung fibrosis after brief use. IF I KNEW that it was slowing the fibrois, I would be more willing to adapt to OFEV. Looks like Lung Transplant for me, if I am eligible. I cling to HOPE.
I have been diagnosed with IPF, fortunately early in the disease progression. I was on Esbriet, and it caused severe fatigue for me. My pulmonologist switched me to OFEV, and I feel MUCH better. Minimal side effects. Lung functions have been stable for 6 months. I'm so glad I have the opportunity to take something that may extend my life and my healthy years!
Diagnosed with pulmonary fibrosis in July of 2015. Treated with steroids....no problems. M.D. changed me to Ofev in July 2016, Was still taking a low dose of Prednisone at the time. Once I stopped the Prednisone. The mild diarrhea became much worse. Then came the loss of appetite and weight loss. Became very weak with muscle and joint pain. I sleep on a wedge anyhow, acid reflux terrible, abdominal pain, fatigue, my cough got worse, nausea and vomiting with no warning. Decided I couldn't take any more. I no longer had quality of life. Stopped it. Within two day my appetite was back, I was less fatigued, no nausea, no diarrhea, no vomiting and my cough was better. Tired of being a guinea pig.
Diagnosed Jan 2016. Started OFEV almost 3 months ago. Age 64, at 170, b/p avg 105/64 . Working, I don't know yet. Absolutely no side effect's. I think general health and weight my be causing some side effects for others. I'm trying to stay healthy enough to kick IPF's butt.
I have constipation while on OFEV. I have had IBS for over 52 years and expected a different result. Terrible nausea that comes and goes all day. If I take two 150mg per day two days in a row I start vomiting 2.5 hours after taking the next pill. At times my teeth litterally hurt then it goes away only to return, weird. Due to severe diverticulosis i worry about infection in the colon and possible intestinal perforation, almost died 7 years ago from this.