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Forteo Drug and Medication User Reviews on RxList

Forteo

USER REVIEWS

Comment from: Juggler 55-64 Transgender less than 1 month Caregiver Published: September 06

Anyone having trouble with this drug should research the bone restoring properties of vitamin K2. Only drug interactions are wayfaring, curating, and other "heavy" blood thinners. Do your own due diligence.

Comment from: mimi Transgender Caregiver Published: July 30

i developed pain on my bones from the first day i started this medication.i push through the pain. it got better, but then it started worst than ever. On the second month of using it, i developed chills and fever.

Comment from: Moha 65-74 Transgender 1 to 6 months Caregiver Published: June 06

Major tingling, burning, numbness in feet and hands, especially at night since I have taken Forteo. Stopped the injections after 6 weeks, anyone know how long the adverse symptoms will last?

Comment from: Jackie 65-74 Transgender Caregiver Published: November 13

67 yr old 1 month.So far no issues so I inject at 7pm in bed due to what I read about dizziness et . No issues yet.i have 5 spinal fx after lifting a couch with UNDIAGNOSED osteoporosis. This med is costly tho.

Comment from: Luka 45-54 Transgender 1 to 6 months Caregiver Published: August 02

I was diagnosed with severe osteoporosis following a L1 fracture due to a medium impact car accident. I found out by the occasion that, due to factors such us low body mass index and genetics heritage, I was at very high risk of osteoporotic fracture (which I wish I knew earlier). I started Teva-Teriparatide (Canadian generic version of Forteo) early April 2024. I experienced lower back cramps after the 1st injection, then body aches, low energy, insomnia and brain fog. However, I'm in the 4th month and the energy starts coming back, aches and brain fog are gone, and I'm off sleeping pills. I feel much stronger than before, I started to train (weight bearing) and my blood tests show improved markers. The injection is easy to administrate. I also bought a special cold bag so that I can transport it when travelling. Also, I had the great news that my insurance will cover the cost, which will allow me to do the treatment for the maximum allowed period (I think it's 2 years?). There are some conditions for the insurance to cover, and it looks like I'm fulfilling them (my doctor had to submit a special form). I'm overall very satisfied and hopeful. I'll post an update at the next scan.

Comment from: Maya 65-74 Transgender 1 to less than 2 years Caregiver Published: November 07

I have been using the inj for over a year and have no side effects. My last decade scan showed an improvement. My doc told me that since the blac box warning has been removed by the US FD A l will be able to use this drug over the two yrs period if required.

Comment from: TerriM 55-64 Transgender 1 to less than 2 years Caregiver Published: January 10

I have been on Foteo for 13 months. Just had bone scan, no improvement, actually a decrease in bone density. I have stopped taking it. $36,000.00 later and taking a shot every day, very discouraged and disappointed. Hope my energy and mood improve now that I stopped taking it

Comment from: ShakyBones 65-74 Transgender 2 to less than 5 years Caregiver Published: December 29

My last post was 9/2022 and I had stopped Forteo in 6/2022 because of side effects. Important to note is that I was only injecting two times a week for a couple years because that's all I could tolerate. It's 12/2022 and I can tell you unequivocally that I didn't realize until now how sick I was while on Forteo. Constant body aches, low energy, and the mental confusion and maybe depression while I was on it (see prior posts). My husband said "welcome back, you're back to your old self". I recently apologized to him for being so sick and not myself. My energy and positive outlook is back and I'm doing more in a day than I was alble to do in a few days. My T-score has stayed stable, but I am very conscious of eating the right foods. Another note, after going off Forteo in June I had severe GERD. Symptons have subsided significantly. I was diagnosed in September with melanoma in situ (in the epidermis only). Not sure if there is any connection. FYI only Seems some people can easily take Forteo...my body just does not like anything foreign.

Comment from: Ouchybunkermed 35-44 Transgender 1 to 6 months Caregiver Published: December 13

I just started Forteo 4 months ago - my bones feel like they're going to shatter...they shake in pain and feels like terrible shin splits. My teeth hurt and the Vertigo is unbearable. I do not like the medication one ioda. Way to many unsafe side effects.

Comment from: sabele 75 or over Transgender 1 to 6 months Caregiver Published: November 11

Last unit was defective; Ely Lilly found a hundred reasons for avoiding responsibility rather than replacing it; it is hard enough to inject everyday without added difficulty. They do not stand behind their product

Comment from: Thor the Real 65-74 Transgender less than 1 month Caregiver Published: September 06

After my first four doses I began having severe pain in my right knee and leg. After two more doses the pain became so severe that I could not walk at all without a cane or walker. I cannot use any more of this medication and I have wasted $3344.82. I wish I could cry but my macho-ness prevents it. I have no idea what to do now about my osteoporosis.

Comment from: ShakyBones 55-64 Transgender 2 to less than 5 years Caregiver Published: September 01

This is an update to my prior posts. It's 9/1/2022 and I've been off Forteo since June-end. My body aches and nausea have disappeared completely. I definitely am more clear headed, have much more energy and more motivation (like I use to have) than when on Forteo. The only negative thing is the GERD that I'm experiencing. I've had to rapidly change most food I consume, I'm on 40 mg of a prescribed antacid and have seen my gastroenterologist twice with another appointment in a couple weeks. I'm shocked at how sensitive my stomach and intestines are to certain foods I have alway enjoyed. Can no longer eat watermelon, acidic fruits and veggie, coffee (but I found an acid free one online), etc. I'm not overweight and get plenty of exercise...just absolutely dumbfounded with my body's sensitivity to foods and overall GERD problems. Endocrinologist wants me to try a half dose of Fosamax (full dose I took 3 years ago made me very sick) but told her until GERD is resolved I don't think my body could tolerate it. Hope my comments help others who have struggled.

Comment from: ShakyBones 13-18 Transgender 2 to less than 5 years Caregiver Published: July 10

It’s 710/22 and I’m 2 years and 2 months on Forteo. Due to staffing issues my DECA scan has not been scheduled and my endocrinologist appointment canceled. I’ve been reflecting on my physical and mental health while on Forteo and have reached a point that I’m exhausted from the nausea, aching body and not having energy. Recently I’ve had a severe GERD episode and feeling even worse. Idk if it is tied to the Forteo. So I’ve come to the conclusion that it’s just not worth feeling this way. I’ve never had a broken or fractured anything and eat calcium rich foods. Crossing my fingers that in time I will feel like myself again.

Comment from: ShakeyBones 55-64 Female Caregiver Published: June 07

I completed 2 years of Forteo injections April-end 2022. However, I had a lot of side effects and ended up injecting only twice a week (Thursday and Sunday) because that's all I could tolerate. In 2021 I had a 9% increase in bone density. My endocrinologist has me continuing beyond the 2 years because I only inject twice a week and she's pleased with the bone density increase. My body didn't react well to Fosamax so I couldn't stay on that. I have Leiden Factor 5 which can create blood clots do there are other drugs I can't take. IDK yet how long I will continue to stay on Forteo. I have an upcoming appointment with endocrinologist and will have a Dexa scan before then. My recent fasting lab results were great. I recently tried injecting Forteo more frequently and had a horrible reaction...severe body aches, headache, nausea. Thought my body might have been able to tolerate more after 2 years. The twice a week Forteo injection still makes be slight nauseated at times and slightly achy. I've put on weight, but have notice an enlargement and thickness to my belly area which is uncomfortable and feels strange. I'll share this with my doctor at my next visit.

Comment from: SHAKYBONES 65-74 Transgender 1 to less than 2 years Caregiver Published: July 26

This is an update from my 7/27/20 posted on my progress with Forteo. I could not tolerate the side effects so began injecting twice a week (Thursdays mornings & Sundays at 6 pm). I've been using the whole cartridge despite the 28 day expiration. I went to my endocrinologist in May after a dexa scan and labs. She said my bone density increased 9%, so that's good news. I also am very conscientious to make sure I get calcium and D3 in meals, plus I take 1,000 IU of D3. I walk 4-5 miles about 4 times a week and do stretching, etc. I've never had a fracture and am healthy in every other way. Forteo still makes me achey but not as bad as when I injected more frequently; and my body feels thick. I'm going to stay on it for another year injecting twice a week. Not sure what happens after the second year if up. Note: Occasionally I have a glass of wine, but I noticed that it makes my body ache relentlessly for a couple days. Forteo has a warning about caffiene and alcohol but doesn't explain it. Hope this helps.

Comment from: Forest 65-74 Transgender 1 to less than 2 years Caregiver Published: April 19

I have not had any side effects. The needle injections are very tolerable. After 1 year, I had a noteworthy improvement in my bone density test results. My 2nd year test will be in May. I hope to see the same improvement. I fell once a few months ago and did not break any bones. This medication can build bone strength. Other medications, like Boniva, are intended to “maintain” strength. If you are at risk, you need a bone building medication like Forteo.

Comment from: Kathy 55-64 Female 1 to less than 2 years Patient Published: November 30

I took this for 18 months and stopped.I had gained but got tired of injection daily. Took Evista for couple years and lost all I gained. Now back on to finished out the last 6 months allowable. I'm having problems with memory. Seems to have started when I began Forteo???

Comment from: Lawrence 65-74 Female 2 to less than 5 years Patient Published: September 27

I hate injections but Forteo with nano needles is barely a pinprick. Only takes 5 minutes a day and no side effects except small temporary welt at the site, like an insect bite but no pain or itch. Much less onerous than fosamax if you ask me. Has to be refrigerated so puts a damper on travel but otherwise no big deal. After 2 years, no big change in my spine but femoral neck BMD increased by 0.042 g/cm2 and Z-score went from -1.9 to -1.6. Total hip Z-score went from -2.2 to -1.7, still terrible of course but way better than it was. It's important to get weight-bearing exercise while taking it, I walked 2 miles every day. I know people complain about the high cost of this drug, I believe it even won some kind of "award" for being overpriced relative to its benefit. I paid about $4,000 a year and for me it was well worth it. Fortunately I have a good Part D plan which paid the rest, at least $30,000 I think. But now seems a generic version is approved so hopefully more people will be able to afford and take advantage of this drug.

SLIDESHOW

Osteoporosis Super-Foods for Strong Bones With Pictures See Slideshow
Comment from: 55-64 Female 1 to less than 2 years Patient Published: July 29

You can just roll over on your bed and have a fracture, my rheumatologist warned, after viewing my bone density result. That was after injection prolio regimen. Within two minutes, My Injection forteo was started, on 4/5/19. I religiously took the daily injection till June 15, 2020. I went in again for a follow up after I had another bone density exam. "your bone density has not changed much", he said. That is the day I made up my mind that the torture isn't worth it for me, to continue forteo. so I am done.

Comment from: ShakyBones 55-64 Female 1 to 6 months Patient Published: July 27

I last posted 7/8/20-began forteo injection every other day. With each injection symptoms of hurting all over and nausea increased. Messaged my dr 7/26/20 that I will try injecting every third day to try reap whatever benefit for my bones. I'm very healthy and active, but the side effects are knocking me down and it takes longer to recover on off day. Wish I didn't have side effects. Will provide future updates in hope of helping others.

References
Medical Editor: John P. Cunha, DO, FACOEP